PICTURE-THIS:

Envisioning
Better Futures
for ICU Survivors
and Families

Welcome!

PICTURE-THIS is part of a growing community of critical illness survivors, their family caregivers, and their support systems.

This website is intended to:

We want this to be a dynamic space that responds to the lived experiences of survivors and families. Please send constructive feedback – or additional resources – to our webmaster.

PICTURE THIS Research

  • Ongoing
  • Past

Comprehensive ICU Family Workbook

Things to do while the person you’re caring for is in the hospital

Preventing critical illness can be a lot of work. Here are some things that can help before hospital discharge:

  1. Ask questions – and take notes!
  2. Work with the care team to map out “action items” for a safe discharge, especially:
  • Have we started to organize financial resources/assets/insurance/POA?
  • Have we identified needed equipment & home modifications?
  • Who will help my loved one with new challenges with moving, thinking, or spirits?
  • How long is my loved one likely to need my support for daily activities? How much time?
  • Who will we call with new needs after discharge?
  1. Share your perspectives, experiences & context with the care team
  2. Involve other friends and family
  3. Set aside at least 15 minutes every day to do something you enjoy – whether it’s taking a walk, reading, meditating, or having coffee with a friend.

Things to do after discharge from the hospital

Preventing critical illness can be a lot of work. Here are some things that can help before hospital discharge:

  1. Ask questions – and take notes!
  2. Work with the care team to map out “action items” for a safe discharge, especially:
  • Have we started to organize financial resources/assets/insurance/POA?
  • Have we identified needed equipment & home modifications?
  • Who will help my loved one with new challenges with moving, thinking, or spirits?
  • How long is my loved one likely to need my support for daily activities? How much time?
  • Who will we call with new needs after discharge?
  1. Share your perspectives, experiences & context with the care team
  2. Involve other friends and family
  3. Set aside at least 15 minutes every day to do something you enjoy – whether it’s taking a walk, reading, meditating, or having coffee with a friend.

Asset Map

Caregiver Care

  • Peer support
  • Support groups
  • Spiritual care resources
  • Respite resources

Testimonials

Resources for Home Improvement and Equipment

Education & Training

Support Resources

  • Care management
  • Personal care services
  • Rehabilitation
  • Recreation & art therapy
  • Transportation
  • Meal delivery
  • Work & financial support

Get Involved

  • Share an idea
  • Share a resource
  • Share a story
  • Volunteer
  • Donate

What’s most important for caregivers:

  • In terms of coping with having a seriously ill family member?
  • In terms of skills for helping their family member through serious illness?